Astmafonds
Covers: Allergy, asthma, COPD, CF, ILDs, PAH, Sarcoidosis, Alpha-1
Activities:
- Providing patient information
- Offering advice and support to patients
- Helpline service
- Recruiting patients for clinical trials
- Raising funds for research
- Raising public awareness of respiratory diseases
- Working with the media
- Advocating on behalf of patients
- development of health care standards (COPD, now asthma) and the versions for patients; development of tools to determine experienced standard of care by patients; tools for people to explore whether they potentially suffer from asthma or COPD; amongst other things.
www.astmafonds.nl
Nederlandse Cystic Fibrosis Stichting (NCFS)
Covers: CF
Activities:
- Providing patient information
- Offering advice and support to patients
- Helpline service
- Recruiting patients for clinical trials
- Raising funds for research
- Raising public awareness of respiratory diseases
- Working with the media
- Advocating on behalf of patients
www.ncfs.nl/index.php
ApneuVereniging NVSAP
Covers: Sleep apnoea
- Providing patient information
- Offering advice and support to patients
- Helpline service
- Raising funds for research
- Raising public awareness of respiratory diseases
- Working with the media
- Looking after the patients interests in The Government / Public Affairs
www.nvsap.nl/
Stichting Astma Bestrijding
Covers: Asthma
Vereniging Nederlands Davos (VND)
www.astmabestrijding.nl/
Cystic Fibrosis Worldwide (CFWW)
Covers: CF
www.cfww.org
Long Alliantie Nederland (LAN)
Covers: General lung
www.longalliantie.nl/
"Sarcoïdose Belangenvereniging Nederland (SBN)"
Covers: Sarcoidosis