Cystic fibrosis links

The links on this page will take you to recommended sites that have useful information on all aspects of Cystic Fibrosis.

Europe

Link to ECFS

The European Cystic Fibrosis Society (ECFS): aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis.
www.ecfsoc.org

Belgium

Link to ABLM

Association Belge de Lutte contre la Mucoviscidose (ABLM): Belgian Association to fight Cystic fibrosis.
www.muco.be

Read reviewers comments on this website (PDF).

France

Link to Vaincre la Mucoviscidose

Vaincre la Mucoviscidose: The French Cystic Fibrosis Association informs patients on strategies and research on cystic fibrosis.
www.vaincrelamuco.org

Germany

Link to Ukoviszidose CF-Selbsthife Ukoviszidose CF-Selbsthife: Self-help for cystic fibrosis patients.
www.cf-selbsthilfe-koeln.de

Read reviewers comments on this website (PDF).
  
Link to Christiane Herzog Stiftung

Christiane Herzog Stiftung: The Christiane Herzog foundation for Cystic Fibrosis.
www.christianeherzogstiftung.de

Read reviewers comments on this website (PDF).

  
Link to Mukoviszidose

Mukoviszidose: advise patients on all aspects of cystic fibrosis.
www.muko.info

Read reviewers comments on this website (PDF).

 

Greece

Link to ΕΛΛΗΝΙΚΗΣ ΕΤΑΙΡΕΙΑΣ ΓΙΑ ΤΗΝ ΙΝΩΔΗ ΚΥΣΤΙΚΗ ΝΟΣΟ

ΕΛΛΗΝΙΚΗΣ ΕΤΑΙΡΕΙΑΣ ΓΙΑ ΤΗΝ ΙΝΩΔΗ ΚΥΣΤΙΚΗ ΝΟΣΟ: Hellenic Cystic Fibrosis Association.
www.hcfa.gr

Read reviewers comments on this website (PDF).

Ireland

Link to The Cystic Fibrosis Association of Ireland

The Cystic Fibrosis Association of Ireland: provides information on the latest news and links to other cystic fibrosis sites.
www.cfireland.ie

Read reviewers comments on this website (PDF).

Italy

Link to Lega Italiana Fibrosi Cistica Onlus

Lega Italiana Fibrosi Cistica Onlus: Italian Cystic Fibrosis Online.
www.fibrosicistica.it

Read the reviewers comments on this website (PDF).

  
Link to Fondazione per la ricera sulla fibrosi cistica- onlus

Fondazione per la ricera sulla fibrosi cistica- onlus: Italian Cystic Fibrosis Foundation.
www.fibrosicisticaricerca.it

Read the reviewers comments on this website (PDF).

Poland

Parental Foundation for Helping CF Patients and Their Families (MATIO)

http://www.mukowiscydoza.pl/

Read reviewer's comments on this webiste (PDF)

Polski Towarzysturo Walki z Mukowiscydoza: Polish Society Against Cystic Fibrosis.

http://www.ptwm.org.pl/


Read reviewer's comments on this website (PDF).


Mukowiscydoza (Cystic Fibrosis)


http://www.muko.med.pl/

Read the reviewer's comments on this website (PDF)


Portal Virtual CF

www.virtualcf.pl

Read reviewer's comments on this website (PDF)

Portugal

Link to ANFQ

Associacao Nacional de fibrosi Quistica (ANFQ): Portugese Association for Cystic Fibrosis.
www.anfq.pt/

Read reviewers comments on this website (PDF).

Russia

Link to муковисцидоз

муковисцидоз: The National Russian Cystic Fibrosis Association.
www.mucoviscidos.ru

Read reviewers comments on this website (PDF).

Spain

Link to Federación Española contra la fibrosis quística

Federación Española contra la fibrosis quística: Spanish Federation against Cystic Fibrosis.
www.fibrosis.org

Read reviewers comments on this website (PDF).

Sweden

Link to Riksförbundet Cystisk Fibros

Riksförbundet Cystisk Fibros: Swedish Cystic Fibrosis Association.
www.rfcf.se

Read reviewers comments on this website (PDF).

 

Switzerland

Link to CFCH

Società Svizzera per la Malattia Fibrocistica (CFCH): Swiss Society for Cystic Fibrosis.
www.cfch.ch/italienisch/frameset.html

Read reviewers comments on this website (PDF).

The Netherlands

Link to NCFS

Nederlandse Cystic Fibrosis Stichting (NCFS): provides contacts and treatment information to cystic fibrosis patients and their families.
www.ncfs.nl

Read reviewers comments on this website (PDF).

UK

Link to The Cystic Fibrosis Trust

The Cystic Fibrosis Trust: is the UK's only national charity dedicated to all aspects of Cystic Fibrosis.
www.cftrust.org.uk

Read reviewers comments on this website (PDF).

International

Link to Cystic Fibrosis Worldwide

Cystic Fibrosis Worldwide: works to promote access to appropriate care and education to people living with cystic fibrosis.
www.cfww.org

 Thank-you to all ERS members who have taken the time to read and review these links.

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For links to websites that provide information or support for specific diseases, please go to the pages on:

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