Cystic fibrosis links

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The links on this page will take you to recommended sites that have useful information on all aspects of Cystic Fibrosis.

  • Europe
  • Belgium
  • France
  • Germany
  • Greece
  • Ireland
  • Italy
  • Poland
  • Portugal
  • Russia
  • Spain
  • Sweden
  • Switzerland
  • The Netherlands
  • UK
  • International

Europe

The European Cystic Fibrosis Society (ECFS): aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis.

 

Belgium

 

Association Belge de Lutte contre la Mucoviscidose (ABLM): Belgian Association to fight Cystic fibrosis.

 

France

Vaincre la Mucoviscidose: The French Cystic Fibrosis Association informs patients on strategies and research on cystic fibrosis.

 

Germany

Ukoviszidose CF-Selbsthife: Self-help for cystic fibrosis patients.

Christiane Herzog Stiftung: The Christiane Herzog foundation for Cystic Fibrosis.

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Mukoviszidose: advise patients on all aspects of cystic fibrosis.

 

Greece

ΕΛΛΗΝΙΚΗΣ ΕΤΑΙΡΕΙΑΣ ΓΙΑ ΤΗΝ ΙΝΩΔΗ ΚΥΣΤΙΚΗ ΝΟΣΟ: Hellenic Cystic Fibrosis Association.

 

Ireland

The Cystic Fibrosis Association of Ireland: provides information on the latest news and links to other cystic fibrosis sites.

 

Italy

Lega Italiana Fibrosi Cistica Onlus: Italian Cystic Fibrosis Online.

Fondazione per la ricera sulla fibrosi cistica- onlus: Italian Cystic Fibrosis Foundation.

 

Poland

Parental Foundation for Helping CF Patients and Their Families (MATIO)

Polski Towarzysturo Walki z Mukowiscydoza: Polish Society Against Cystic Fibrosis.

Mukowiscydoza (Cystic Fibrosis)

Portal Virtual CF

Portugal

Associacao Nacional de fibrosi Quistica (ANFQ): Portugese Association for Cystic Fibrosis.

 

Russia

муковисцидоз: The National Russian Cystic Fibrosis Association.

 

Spain

Federación Española contra la fibrosis quística: Spanish Federation against Cystic Fibrosis.

 

Sweden

Riksförbundet Cystisk Fibros: Swedish Cystic Fibrosis Association.

Switzerland

Società Svizzera per la Malattia Fibrocistica (CFCH): Swiss Society for Cystic Fibrosis.

 

The Netherlands

 

Nederlandse Cystic Fibrosis Stichting (NCFS): provides contacts and treatment information to cystic fibrosis patients and their families.

 

UK

The Cystic Fibrosis Trust: is the UK’s only national charity dedicated to all aspects of Cystic Fibrosis.

International

Cystic Fibrosis Worldwide: works to promote access to appropriate care and education to people living with cystic fibrosis.

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