Adults versus children
Currently, 34% of European CF patients are adults, with the proportion rising as survival rates improve.
There are marked age-related changes in healthcare resource use for CF patients, as older patients generally require increased care and more expensive resources.
A newly diagnosed infant is likely to require treatment that costs approximately €3,000 per year, while treatment may cost more than €40,000 per year for an adult with advanced disease.
Time spent in hospital
Approximately 15% of CF patients have at least one non-routine hospitalisation per year, with a mean duration of 22 days.
Time off work
The number of lost work days for patients with CF varies according to the degree of disability.
In the UK, 50% of adults with CF are in paid employment and ~25% are students in full-time education.